Batten Disease expert baffled by BC's decision to cut funding to nine year old Charleigh Pollock for her life-sustaining medication, Brineura ...
A charity golf auction organized by a prominent course architect and his family has raised over $6 million to fund research into a cure for juvenline Batten disease.
Charleigh's mom says she is hopeful but "very cautious" after hearing B.C.'s Ministry of Health will review the funding of a ...
B.C. Health Minister Josie Osborne has directed staff to investigate the case of a terminally ill Langford child who is weeks ...
A Langford mom says she feels “blindsided” by the province’s decision to end funding for her terminally ill daughter’s ...
The mother of a terminally ill 11-year-old has spoken of her heartbreak at knowing her daughter may not live past her teens. Anna Lowri Roberts, from Sarn Mellteyrn, in Gwynedd, was diagnosed with ...
Anna Lowri Roberts is one of 39 people in the UK with CLN3 Batten Disease The mother of a terminally ill 11-year-old has spoken of her heartbreak at knowing her daughter may not live past her teens.
Anna Lowri Roberts, from Sarn Mellteyrn, in Gwynedd, was diagnosed with CLN3 Batten Disease , externalin May 2022. The illness is a fatal neurological disorder that usually begins in childhood.
The Department of Natural Resources confirmed highly pathogenic avian influenza, or bird flu, was found in a merganser ...
While most parents of kindergartners are worried about their kids learning to read and playing well with others, Bryan and Beth Fugere of Shakopee are worried about enrolling not just one, but two ...
William & Mary has received a $50 million gift from Dr. R. Todd Stravitz and the Brunckhorst Foundations. It’s the largest scholarship gift in the institution’s history.