The only drug that treats children with a rare degenerative disease called Batten disease could be withdrawn within the next few months if negotiations over its price fail.

The group of women gathered at the Penny Anderson Conference Room #135 at Mission Tribal Health to make a ribbon skirt. All of the women are ... sharing information regarding heart health. Heart ...

Anna Lowri Roberts is one of 39 people in the UK with CLN3 Batten Disease The mother of a terminally ill 11-year-old has spoken of her heartbreak at knowing her daughter may not live past her teens.

Anna Lowri Roberts, from Sarn Mellteyrn, in Gwynedd, was diagnosed with CLN3 Batten Disease , externalin May 2022. The illness is a fatal neurological disorder that usually begins in childhood.